von Hipple - Lindau von Hippel-Lindau disease vhl is a rare, genetic multi-system disorder characterized by the abnormal growth of tumors in certain parts of the and cause other types of diseases like bodycerebellar hemangioblastomas, retinal hemangioblastomas, pheochromocytomas, kidney cancer, pancreatic cysts and pancreatic neuroendocrine tumors. there are ways that u can try to prevent (VHL) by doing screenings like Complete general history and physical exam, Ophthalmologic exam at diagnosis and annually, Abdominal ultrasound (US) at diagnosis and then every two years, CT abdomen (or MRI) using VHL-specific protocol only if abnormality detected on US or abnormal pheochromocytoma screening labs, MRI of the brain and spine only if neurologic symptoms. at the age of 10 & under. Once you are diagnosed with (VHL) there is no way u can stop it but if u recognize it early enough it can make complications less severe
von Hipple - Lindau von Hippel-Lindau disease vhl is a rare, genetic multi-system disorder characterized by the abnormal growth of tumors in certain parts of the and cause other types of diseases like bodycerebellar hemangioblastomas, retinal hemangioblastomas, pheochromocytomas, kidney cancer, pancreatic cysts and pancreatic neuroendocrine tumors.
there are ways that u can try to prevent (VHL) by doing screenings like Complete general history and physical exam, Ophthalmologic exam at diagnosis and annually, Abdominal ultrasound (US) at diagnosis and then every two years, CT abdomen (or MRI) using VHL-specific protocol only if abnormality detected on US or abnormal pheochromocytoma screening labs, MRI of the brain and spine only if neurologic symptoms. at the age of 10 & under. Once you are diagnosed with (VHL) there is no way u can stop it but if u recognize it early enough it can make complications less severe